Experience as a sarcoma patient informs clinical research manager’s role
Erica Peters was working with sarcoma patients when she received her own myxofibrosarcoma diagnosis 10 years ago.
“I had been working in clinical trials for about three years when I was diagnosed,” said Peters, a clinical research manager for the Fred Hutchinson Cancer Center/University of Washington radiation oncology research team. “I’m working in sarcoma — what are the chances? It was like, ‘I’m in the same situation as the people who are here to get treatment.’”
Her ability to empathize with other Fred Hutch cancer patients has served Peters well over the last decade. She and her teammates coordinate clinical trials in radiation oncology, managing patient participants’ schedules and care and helping them navigate any adverse events.
It’s a demanding job that requires both intense focus and organizational skills, but Peters only has to glance at the scar that runs the length of her left arm to remember her own experience with radiation, surgery, recovery and physical therapy.
“I am definitely more empathic and understanding now about what patients are going through,” Peters said. “From the coordination side of things, my work is very much about schedules and timing. But I know these people are going through so much in their life that scheduling a blood draw is the least of their worries. Looking at my arm is a daily reminder of that.”
Patient-to-patient connection
While there are over 80 subtypes of soft tissue cancers, or sarcomas, Peters said hers was more benign and slow growing, “but it was still cancer and still needed to be addressed.”
Luckily, the sarcoma was detected early when Peters followed up on a strange skin reaction to a routine tuberculosis test. Treatment was no picnic, but she said she does appreciate the perspective the experience gave her.
“I connect with patients on a different level now,” she said.
She's happy she can connect other cancer patients with a treatment that proved effective for her.
“With me, the plan was to radiate the tumor first to potentially shrink it before surgery,” she said. “I went through six weeks of radiation, five days a week, about 20 minutes in and out. My coping mechanism was to count the number of seconds the beam was on.”
Her other coping mechanism, she said, was continuing to work in cancer research.
“I went to work early every day,” she said. “For six weeks, I worked full time, then went to radiation, then went home. It helped keep my mind busy.”
Surgery — followed by physical therapy — helped her regain full use of her left hand and fingers.
“The first time I tried to snap my fingers I screamed in pain,” she said. “I wasn’t ready yet. I had to relearn some things and gain strength enough to lift grocery bags. There were some functional issues. But I had a really good prognosis.”
Content Original Link:
https://www.fredhutch.org/en/news/center-news/2023/09/heart-of-the-hutch-outstanding-care.html